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Carville's Cure

Leprosy, Stigma, and the Fight for Justice

Audiobook
1 of 1 copy available
1 of 1 copy available
Following the trail of an unexpected family connection, acclaimed journalist Pam Fessler has unearthed the lost world of the patients, nurses, doctors, and researchers at Carville who struggled for over a century to eradicate Hansen's disease, the modern name for leprosy. Amid widespread public anxiety about foreign contamination and contagion, patients were deprived of basic rights-denied the right to vote, restricted from leaving Carville, and often forbidden from contact with their own parents or children. Though shunned by their fellow Americans, patients surprisingly made Carville more a refuge than a prison. Many carved out meaningful lives, building a vibrant community and finding solace, brotherhood, and even love behind the barbed-wire fence that surrounded them. Among the memorable figures we meet in Fessler's masterful narrative are John Early, a pioneering crusader for patients' rights, and the unlucky Landry siblings as well as a butcher from New York, a nineteen-year-old debutante from New Orleans, and a pharmacist from Texas. Though Jim Crow reigned in the South and racial animus prevailed elsewhere, Carville took in people of all faiths, colors, and backgrounds. Aided by their heroic caretakers, patients rallied to find a cure for Hansen's disease and to fight the insidious stigma that surrounded it.
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    • Publisher's Weekly

      April 27, 2020
      NPR correspondent Fessler’s polished and compassionate debut examines the history of Hansen’s disease (the modern name for leprosy) in America through the story of the Louisiana Leper Home in Carville, La. In the 1890s, New Orleans dermatologist Isadore Dyer established the quarantine facility for leprosy patients on the grounds of a defunct sugar plantation. In 1921, the U.S. Public Health Service took over Carville (as it was called by locals), making it the only national leprosarium in America. Fessler profiles several patients (most of whom were sent to Carville by mandatory state reporting laws), including her husband’s grandfather, and New Orleans debutante Betty Parker, who fell in love with a fellow patient and ran away with him. Fessler also documents the 1941 discovery that the antibiotic promin could be effective in treating Hansen’s disease, and notes that by the 1980s additional medicines had slowed new outbreaks and made most cases manageable. Carville’s planned shutdown was delayed until 1999, Fessler writes, because many remaining patients had nowhere else to go. Her well-researched and articulate account humanizes sufferers and caregivers alike, and offers hope in the medical field’s ability to halt the spread of contagious illness. Readers will be enlightened and encouraged. Agent: Gail Ross, the Ross Yoon Agency.

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  • English

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